|Things are looking up
||[Aug. 13th, 2006|05:04 pm]
It's been an interesting and very good few days.
First, some of my adoring fans have been asking for photographs. For those that just need to see:
My two photographers, Adam and Andrea have done a decent job of capturing my essence, I think. Be warned, some of the images are kinda large. Dad was going to take some new images of me today but the camera's battery was too low. gonna have to wait until he goes down next, I guess.
Ok. On with the update.
Over the past week or so the doctors and nurses have been trying to ween me away from my nasal canula. After graduating from the CPAP, I've been strictly on the nasal canula with a constant 2L/min going up my nose. Both the canula and CPAP have the down side of irritating my little nose, though, which necessitates having large bloody boogers sucked out of my nose.
Well, starting at the beginning of last week the rate of flow was decreased from 2L/min to 1.5L/min. The next day it was down to 1.4L/min and shortly there after it dropped to 1L/min. Not everything was ideal, however. As the rate of flow dropped, I would have more bradycardias. Nothing critical, but still not a good sign.
By Thursday (July 10) I had been at 1L/min, but Mom and the nurses were noticing something: I spent a lot of my time without the canula in my nose at all! As a friend of Mom and Dad had noticed, I am unusually dexterous and was constantly pulling the canula out of my nose. The discussion on Thursday was that, if i was able to do so well without the canula ina de facto state, why not do away with it all together?
When Mom and Dad arrived on Friday, I was canula free and had been without for nearly 24hrs. What's more, the number of bradycardia and apnia episodes had dropped a great deal, I was much more active(wiggling and flailing are my two favorite things right now), and I was much more vocal.
You might not be able to tell from my journal, but I've been a bit quite in the hospital. I mean, I cried when born and fussed when blood was taken early one, but lately i've been pretty stoic. No more! I am a complaining, cooing, grunting little man now. The nurses have suggested that removing the canula has had a synergistic efect on my progress. Yea!
As of today (July 13), I am 28 days old and the only support device still attached to me is my food tube. It used to run down my throat, but in order to help me adjust to breast feeding, they have snaked it down my nose into my belly. dad keeps saying something about some guy named Mr. Cotter, some guy saving, "Up your nose with a rubber hose", and then warning me against Scientology saying, "Look what happened to Chef. Flunk! Flunk!"
I am getting the hang of breast feeding. The instinct to suck is definitely there now, but I'm still having problems with the whole suck-swallow-breath coordination. I have new inspiration, however; one of my favorite nurses, Mona, was telling Mom and Dad that before discharge I need to be taking all my feedings orally (by boob or bottle) and need to have got five days without a bradycardia. The nurses are so pleased with my progress that they have given Mom and Dad some videos we need to watch before I am allowed to come home with them, have suggested they get a car seat for me within the next week, and to get a pediatrician in Ithaca...also within the next week.
Now, I don't want anyone to get too excited about this. It will still be some weeks before I can come home, for sure. Still things are looking up.
Speaking of looking up, Dad saw me do something that struck him as unusual today. I was in my isolete (which Dad calls my terrarium) and was unhappy with where my head was. So, I picked it up and moved it.
I guess the significance was that I picked my head up entirely off the bed and moved it. He and Mom had seen me lift my head while resting against them, but I was at an angle at those times. Mom and Dad suspected even that was odd, but laying down and picking my head up evidentially was very, very striking.
That's all for now.